Good bye 2018. You were good to me.

These are some of the highlights of 2018 for me. As is usually the case, my family, my children and grandchildren mean the world to me to me, so they are all there! Unfortunately, I only got to see my oldest daughters on video chat or pictures that they sent me. Since those are not my pics, I am not sharing them in this blog.

Went to Pechanga casino w Robert & Michael

My friend Gaurav came to.visit and took us to breakfast and for a ride around the beautiful wineries!

I celebratedy 20th year since diagnosis with Pulmonary Hypertension

 

Breathe Easy & Rest in Peace Sally Maddox

Now that i have had some time to process this  HUGE loss our small community has suffered today , I want to say something, that won't come close to do Sally Kinney Maddox justice.

Sally did so much for us, her PHriends and PHamily.
Serving many times and many years on the PHA board, she PHought tirelessly for us. She spoke at many events around the country to bring awareness to our fight. She advocated for us even when we didn't know we needed it. She lead support groups , got her, i believe, masters degree, and so much more, all while silently suffering with this fucking disease that PH is.

Pulmonary Hypertension is progressive. There is nothing that can change that right now.
I know that PH will probably eventually take me too.  As well as I am doing now, as well as I thought Sally was doing. She suffered silently and I believe didn't let anyone know but those  closest to her. But every time I spoke to her, saw her posts, saw her at conference, a board meeting that I was invited to, or at the PHA offices, she was so full of life and love and a smile for each and every person she came into contact.
Honestly I still cannot believe she is gone.
Although I didn't talk to her much or see her at all in many years, I always have had a huge admiration for Sally. Admiration, respect, aww.and of course I loved her too. This is a.huge loss to the community.
Rest in peace Sally! Breathe Easy!
We need the fucking cure already.

Bye #KnowVember

Here we are , the last few hours of the last day of awareness month. What a wonderful job we all did raising awareness! I'm so proud of all of us!
I want to personally thank each and every one of you, but since I can't do that, I'll just say thank you for your beautiful words  that have inspired so many of my memes and graphics this month. You guys are all so awesome! Thank you for trusting me enough to make your profile pics , cover pics and memes that you shared all month long. Your sharing my fun, educational and even whiney 'creations'  touched my heart!!! You guys mean so very much to me! I love you guys and look forward to making more awareness raising graphics for many more years to come for all you wonderful people!

So for now, let's say good bye to #KnowVember &  #PHAwarenessMonth and look forward to all the Holydays, (as my momma says), coming! February is #RareDisease I think after that May is #WorldPHDay !!

From the bottom of my heart
Thank you for your love and support !
Hugs & Periwinkle Kisses

Alex
aka Flippymom