Sunday, March 8, 2015

Stop it!!!

saw this image today. totally made me think!



how many of us have dark negative thoughts when we should be having thoughts of light and love?
we are Light and Love. Beautiful, Brilliant, Loving & Loveable. We shine even through our depressions. We breathe and live and love thru the pain. what is stopping us from thinking and living the light that we are?

stop the negative self talk... I have this problem too. self deprecating, my sister says... my bff now tells me, stop talking to my friend like that!

How many of us would actually speak to others the way we speak to ourselves?
"You're fat. you're stupid. idiot! fucking think idiot! "

I have actually been catching myself lately. yesterday i went to the fridge for dinner. pulled out leftovers. saw leftovers from a meal i went to with my family and said.. You idiot! think. and then I responded to myself You are not an idiot. You didn't think. you are hungry and you just pulled out the first thing you saw. when i came out into the living room , I saw my bf beaming! :)

Let's work on this together if this is your problem too. ok?
comment yes if you want to...  we'll work on this.. encourage each other...  read set Stop It! 

Friday, February 27, 2015

Just another Brick in the Wall

Have you ever felt as if you have hit a brick wall? of course not literally... but like you just cannot move another muscle, or you just cannot stand for anymore time or you'll fall flat on your face?

well, I have hit that brick wall so many times this past week and a half, it's not even funny. Some people think when you say you are crashing, it means i can go another hour and I'll be ok..  But if I say I'm crashing, I mean, right now this very instant, get me somewhere where i can sit or I will fall over. If i saw I need to puke, don't stand there looking at me like I'm stupid. I mean, I cannot move fast enough or far enough to get to the toilet, trash can, sink, whatever, to make it and u need to bring me something before it goes everywhere.


Daily life with a chronic illness, and in my case, several chronic illnesses, isn't fun and games... not usually. yeah i take lots of pics of me and my family, especially my gorgeous grand! :) :) :) she is the light of my life! but if u look close enough, you can see how really exhausted I am, just hiding it behind the smile. People have asked me why I dont just show how I really am, or when asked how I feel, tell the truth... well, it's easier to hide behind a smile and say "I'm Alright", than to explain to you how I really feel and how things really are.

telling someone who doesn't understand Pulmonary Hypertension, panhypopituitarism or fibromyalgia, and let's be honest, if you dont have these things, you dont understand what living with it is like... is 1. exhausting in and of itself. because you see their eyes glaze over and you just want to stop talking. 2. makes you more acutely aware of how things really are, and 3. makes it all the more real for yourself.  So I'll stick with I'm Alright thanks, hiding behind the smiles.

I put the bricks up to shield myself from the outside and to protect myself from what i'm really feeling, thinking.

All in all it's just another brick in the wall.

Thursday, February 26, 2015

on a scale of 1 to 10

i need to talk for a bit here.

this is the second worst day of pain that i have had in several weeks. like usual though, it has come with exhaustion and nausea and dizziness. :( i can't even craft today, even the glue gun is too heavy.

 i'm keeping hydrated with crystal light ... ive stopped coke... do you think this is why i'm in such pain? It's been about about week now. I see the endocrinologist tomorrow... was going to the Vietnamese embassy to watch a free movie and get a tour around the embassy today. now there's no way. i just feel so awful. dont wanna cry. not going to cry!



i think i need to sleep. this really really sucks... you know? I feel this lump n my throat butu keep pushing it down. i am NOT going to cry. so tired. so much fucking pain. :( :( :(  i know i've been blessed with more good than bad days. mostly good days! in the past several years. but now.... i just want to curl up and sleep.... but then i think i'm wasting my life by sleeping it away. we all know how precious life is... so why am i wasting it. even if i'm up  watching tv or crafting or talking to you guys, i feel at least i'm doing SOMETHING. you know?


 on a scale of 1 - 10 where 1 is no pain and ten is the worst pain you've ever had in all your life.... i'm at a 7.5 or 8

Monday, February 23, 2015

God has blessed me these past years with feeling good, motivated, energetic, even with chronic illness. i have wondered when the other shoe will drop. you know? I haven't felt "sick" like this in a while. seriously. besides fibro pain, i could have forgotten about PH and chronic illness and all that. more good days than bad. right? but this reminds me how delicate our bodies really are. how many things can really just go wrong and how one day, we will all go kaput.  regardless if you are sick or not... it will happen. Only Jesus rose from the dead. Mary was assumed into heaven body and soul without dying first. but.... i'm not even 10% of the woman my blessed mother is! ok not even .0005% . so..... I wont be assumed and I'm certainly not going to rise from the dead. lol I know things could be sooo much worse.... I know my conditions are small, comparatively. I know my symptoms are tiny comparatively. I know my pain is tiny too. but with that being said, it's all i can focus on. so it seems to take over everything I do. can I cook tonight? do I have energy? and if I do cook, can i clean up the mess I make? can I hold up a glue gun? or is it going to be too heavy? A glass of water gets heavy too!!! can I keep my eyes open long enough to watch a movie? how about a 30 minute tv show? right now, i'd have to say no. i hate feeling like this!  and of course, you do know, with all that comes depression!! so either way i'm screwed. I'm going to go lay down now and try to sleep. hopefully not for the entire evening. i just feel like i'm wasting my life away.

Emotional crap!!!

I'm not a crier. i never was. when i was first diagnosed and couldn't do anything for my kids or myself, i cried all the time....  but they were so young they didn't understand... and their way to cope was to laugh at me. so i forced myself to stop crying and it's been forever since I boo hoo'ed. it hate crying. the way t makes me feel. yesterday i actually sat for five minutes and bawled my eyes out. the pain and exhaustion were so totally overwhelming. but when my roommate walked in, I totally dried off my tears and that was the end of that. now i feel like everything is making me want to cry... ugh!!! :( :( I hate this shit

Monday, October 20, 2014

People on the Net

So like, you hear all kinds of horror stories about people meeting the wrong person online. or cyber bullying. or whatever. well, this isn't a horror story,  listened well. But I did fall too fast for someone who really wasn't. Let me say, my friends told me about a reverse picture look up. So... I looked. if you have a picture on your hard drive, or if you have pictures on a website, you can find out if that picture has ever been used before to scam on people, like myself.

I joined a dating website because my friend and I made a deal, if she joined one, I would as well.  didn't think it was going to happen any time soon, but she surprised me and did. So I joined, not really thinking anyone would message me, and not really going on the site to look either. I started getting emails, I had received a message, someone had looked at my profile. over and over and over. I started reading some of the messages and since the majority of people were "geographically undesirable", they were not replied to. But then this one guy, in my area, messaged me. Very handsome. We started talking. and talking, and talking. He asked me for my email address. I gave it to him. He asked me for my yahoo messenger name, I gave it to him. what would be the harm? We emailed 2-3 times a day, and messaged each other for several hours at a time. Since I'm disabled, and not working, I had plenty of time to chat.

I woke up in the morning and ran to my laptop, sometimes even checking my mail on the phone before even getting out of bed. He was so romantic! He was understanding. I told him 100% of everything that guys out here are like, yeah, no thanks. my health conditions. my views on lots of things, these are usually deal breakers, I have found. Yet, he was ok with it. I told him I wanted things to go very very slowly. He said, he felt like women have the right to steer the relationship in any way they want.

I wanted to show my friends his profile on the dating site, but he had deleted it. When I asked him why, he said he didn't need it any longer. I asked if he had met someone, and he said yes, he met me. ok red flag. why would he think say that, if we had only been talking for a few weeks. Meanwhile, I continued to speak to other men who messaged me on the dating site.  One guy was military and he asked me who I banked with. I said, even if I felt comfortable enough to give it to him, I would never give out my banking information online. He said he was military and couldn't access his account because he was out of the country. He said none of his family had a way to send him money. too bad so sad. I was not going to give him any info. well, that was the last I heard from him. I patted myself on the back and continued chatting with men who messaged me.

Another guy basically asked me the same thing, in a roundabout way... and I shut him down immediately too. So I thought, I was doing well and I had my wits about me. I thought I could catch a jerk, a con, a mile away. But then I started talking to this guy. Man, he said everything right.

No, no way in hell was I in love, but I did care about him enough to say a prayer for him (or who I thought this person was, but really was not), every night.

I continued to see red flags throughout our conversations. The profile pic showed a man with a young girl, probably 8 yrs or so. I asked about her, how she was, what was she like, what grade was she in. He would change the subject. I thought, I will talk until I'm blue in the Frikin face, about my children and grandchildren, you know? so I thought, ok I'll ask again later.  And when I did, he said something to the effect that I doubted how much he cared for me. That made me feel so bad because here he was sharing his feelings and his whatever, and who was I to doubt?

According to him, he was in the UK on a business trip and he was about to make so much money that he would never have to work a day in his life again. RED FLAG. yeah right. He said he was an engineer, and he was going to lay pipes down in Africa and that tomorrow, the contract would be signed.
I asked about his job, and he said this one thing in such a way that, at least I felt like, he was saying I was too stupid to understand. However, keep in mind, I have very low self esteem, and he probably somehow knew that, no I wouldn't have ever told him that, but somehow he knew, so he played on that, I'm sure, and so I wasn't going to ask gain.

I saw on his profile on the dating site, that his religion was "Christian". I am Catholic, and even though I am not very good at my faith, I still treasure my beliefs and everything. you know? I love my God and Virgin Mary, my heavenly mother.  I love my angels and saints.

I asked him what denomination of Christianity to subscribed to and he said he was Catholic. Major Red Flag !!!!!  When people ask Catholics what religion they belong to, we always say Catholic. we never say Christian, even though we are. when someone hears the word "Christian" it is automatically implied that they are not Muslim, Hindu, OR Catholic (or any other non Christian religion). Yes I am Catholic and I am a follower of Christ, so I am Christian. However, I am Catholic. ask any Catholic out there, who is proud of their faith, who loves their faith, we say we are Catholics. So when he said he was Catholic, I pressed on. I told him who my favorite saints are, my patron saints, (St Therese, the Little Flower, St Christopher, the patron saint of travelers, and St Anthony, the patron saint of lost items. Also, my favorite apparition of the Blessed Virgin is Virgin De Guadalupe, since I am Mexican American (chicana, born in the states with Mexican born parents). I asked which were his favorites. no response. just like I didn't even ask. Ok. maybe he wasn't a huge big time Catholic, I reasoned with myself. Who am I to judge?  I let it go but didn't forget.

So I decided to tell my friends online. When I did, I posted the pics he had sent me via email. So many were concerned, they just knew he wasn't who he said he was. They told me about doing a reverse image look up on google.


However, I had no idea how to do it, so I had to do a little bit of reading before I could do so. I uploaded the first picture he had sent me, and nothing came up. The second picture came up right away, and I went to the first few websites that came up. The first two were in a different language, and when  I went to translate.google.com, it came back gibberish. So I continued to look and found more pages with the same picture. I checked a third and a fourth, and they all came back as being used fraudulently. 

So I did what I had to do, deleted all images off my hard drive, deleted all emails, blocked his email address, so that I would never receive another email full of lies, blocked him on messenger, and deactivated my account with the dating website. 

After all that, I sat for a moment and cried. 

Don't let this happen to you. Be vigilant. Listen to your brain more than to your emotions. Look for red flags, and don't try to make excuses when they come up. They are red flags for a reason, you know?   

Do I have to say that red flags are warning signs that very often come up when you are dealing with a fake person wanting to con you out of your personal information so they can rip you off? Do I have to say that they warning signs are there for a reason, and we have to look into them, so that we aren't taken advantage of, or end up with a fractured or worse, broken heart. However, I feel I must say that, even though, I want to give up and never try dating again, I have to be opened to whatever God sends my way, and trust in God and in myself, to see the warnings and act upon them accordingly. 

It's 1:30 in the morning now. my window is opened for some fresh air, and all I smell is someone smoking marijuana. so I think I'm going to close the window, turn off the lights and go to sleep. Sleep well everyone, and if you are looking for someone to hold you at night, keep the faith and pray that God will send you the real person you are meant to be with. If you have that special person in your life already, cherish them, love them, and treat them as you would want to be treated! 


Good night. 

Saturday, September 6, 2014

a fb post i did late last night

I'm reading a little bit tonight and read where several of my ph friends might have cancer, or already were diagnosed with it. and then I say a tiny baby boy lost his battle with PH, and all I want to do is cry now!!! it's nearly 2 a.m. and all these thoughts are going on in my head. thinking of our precious Joy. i loved her so much!! still in do in fact. and these babies suffering with this blasted disease SUFFERING! and their mommies and daddies suffering with them because they don't know what to do to help them. and then they are ripped away from them when they succumb to Pulmonary Hypertension. WE NEED A CURE!!! DAMN IT! We NEED A CURE!!! i don't know what i would do if I was the momma to one of these babies... i would go out of my mind. I think of Lillyana and her momma Kori. Lilly has had PH since she was one, she was dx at a year. she's thriving at 8, or is it 9? but how must Kori have felt? when she is first told, you may not see your daughter grow. I can't begin to imagine the pain these families are experiencing. Yes, I have lost loved ones to disease, my dear sweet beautiful sister, and that was one of the worst pains i have ever felt, and still feel. but the pain of losing a CHILD? I can't bare to even think of it. I think of my kids and how healthy they are, thanks be to GOD almighty! and my gorgeous Ellie, always smiling, laughing... I can't even bare to think of it. God please bring an end to ALL Suffering! To ALL Diseases!!! and famine, and war .. please don't let these momma's and daddys have to suffer and bury their children. I HATE THIS SO MUCH!
I haven't cried like this in so very very long. and I hate it.

this is getting way tooooooo "real" again. you know? I KNOW what PH is. I KNOW is it incurable. I KNOW it is progressive. i KNOW all these things, and yet, I push it all to the back of my mind and i play with my Ellie and I help my kids as much as I can, and I work so hard to raise awareness but all these things that i KNOW, are pushed way way way back there. this kind of happens to me now and then. it all gets too REAL again, and I back wayyyyyy wayyyy up... I don't want to do that but I think for my own mental health and well being, I will need to... just hope that by November, I will be back kicking and screaming as always.    I may not have met the majority of the people here on fb, i may never, but you guys are in my heart forever