The worst thing about being sick isn't the medications streaming thru your veins, or the poking and prodding they do during exams or procedures. It's not being able to live your life the way ou want to. For me, that's the worst thing. Yes, I'm better off than I ever thought I would be, and really, on good days, I feel like I'm not even sick. But those good days do come to an end, eventually. For me, I mostly have good days, until I get so tired that i can't do anymore.
I get tired very quickly. I "crash" and immediately need to sleep, or sit down. Yesterday, I was attaching something fun to my desk top at work and had to be on my hands and knees. It was the middle of the day and I was doing well all morning. When I got up off the floor, I was so tired and out of breathe, it really is an awful feeling.
My sister told me recently that women with heart disease who do things where their bodies aren't fully extended, such as on your hands and knees, or bent over to sweep or mop, clean the tub or vacuum, are more likely to have heart attacks. I don't know where she got her information, but now I'm not allowed to do any of those things. Don't get me wrong, I'm not a neat freak like she is. I'm not even CLOSE! :-) However, if I want to do something, gosh darn it! I need to be able to do, and not worry that my day will be shot because I'm too SOB.
Any kind of hill or stairs makes me SOB and makes my heart beat almost out of my chest.
Chest pains are scary. Are you having palpitations? GERD? or God forbid, a heart attack?
wow, I guess for me, there are a lot of bad things associated with having a chronic, incurable disease.